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Yes, today's the day. It is supposed to be delivered at 1:30 PDT. House is a mess and DH is sleeping, but what can you do? More later. Webster

After all this time and angst I finally got notice from my insurance company (but not from the sellers) that my Quantum Edge has been approved. Now the sellers got their notice too, but are waiting for hard copy to proceed. My letter came two days ago, so I assume they got theirs then as well. Now they have  to send it to the purchasing department. and from them I will find out how much my copay will be, possibly as much as $5000! Since Obama care has required all uninsured people who cannot afford an insurance policy to go through DSHS, DSHS has cut off certain services they were paying for me. I don't think they are going to pay for my co-pay since I was just billed for the one when I saw my PCP. I have been using a Jazzy 600 that was given to me by the guy who bought my brother's 1980 truck. It's too big for my house. I have to take one arm off so I can make it through the doors, corners are tight, it's a bit uncomfortable -- but it was FREE! It  also has some soup...

My brother likes to wheel and deal; it's just the way he rolls. So when a neighbor of his expressed an interest in buying his old pickup truck, he said, "So what do you have  to trade?"  It turns out this guy has a wheelchair (brand unknown) that he says is worth about $50000.00 and he offered up that. My brother took him up on it and it will be brought over to me on Saturday. I don't know his story behind the wheelchair, but I will find out some of the background then. I have no idea how old it is, just that it is an electric chair and has some super-duper type batteries and will go up hills with  no problem. I HOPE it will fit my rather large butt comfortably, and will work out well for me.  If not, as my brother says, I can always sell it. As for the Quantum Edge -- It is still is review by the insurance company, and I'm not due to have a response until July 3. I looked over the paperwork that was sent in by my PT and my PCP, and things have changed with me...

Well, I gotta say, I am so jealous of people who are warm blooded, because feeling cold all the time sure sucks. I guess that's why I like to stay snuggled under my comforter in the mornings. Lately, however, I am making a valiant effort to turn around my internal clock. Doesn't much help with staying warm, though, but Summer is slowly creeping our way, and it's predicted to be a good one. But right now, and for the forseeable future it's all partly cloudy, rainy, or with showers and temps in the low-mid 50s, dropping to 41 at night. We had the WETTEST March on record. Very little snow pack in the mountains until February when it came down in droves - warning off water rationing this Summer. Considering what kind of Winter much of the country has had to put up with I don't know what I'm complaining about. Perhaps it's just how  I feel these days. Uncomfortable, and a little out of control. As you may have noticed, I screwed up my template and I just don...

They say that patience is a virtue but I am feeling anything but virtuous waiting all these months to get the ducks in a row in order to get my Quantum Edge chair. The latest is that I have to see my PCP again to have her fill out a "face-to-face" series of questions regarding the necessity of my getting the chair. And she's busy out of the office for the next two weeks, so my appointment with her is April 8. I  was hoping to have this baby by the end of January --- but Noooooooo. Still not here. I am trying to concern myself with what color I should get. My first choice was Candy Apple Red, then I moved on to Sapphire blue (purple), then Emerald Green, and lately have been thinking about the bright Orion Yellow. What would work best in our drab Pacific Northwest weather , whether  inside or out.  I also want to make sure it has the elevating feature (if it's covered, cause I sure can't afford to pay for extras). This has been the worst year of the nearly 30 ...

I just thought this was funny. So, don't take this personally please. I am not commenting on anyone's beliefs. Be well, Webster

Well, I finally got some information from both the vendor and my PT eval. I was sent the 12  page review that must be submitted to the insurance company. Now all they need is another signature from my PCP in order to submit it to the insurance company. This won't take long as they wrote it   all out for her and all she has to do is sign it and fave her nurse fax it over. Easy Peasy. Progress indeed. I must say, I have progressed significantly in the last six months. I have been giving myself the Copaxone shots, but they don't seem to be effective at warding off even little relapses, those are the ones that I don't realize I am having until I start to recover from them. What an odd disease this is. The good thing is I see my neurologist later this month, and we can discuss what to do next. Thus far I  have nixed Tysabri and Gilenya due to their rather negative side effects, with little promise of improvement. What else it there? I haven't been keeping up on the n...

They say you learn something new every day, and by golly, to day I did. I was listening to "The Swing Years and Beyond" this evening; in their third set they played the original "Tip Toe Thru the Tulips."  I had always thought that Tiny Tim wrote that song back in the 1960s, so when I heard this, I felt  bamboozled! If you actually listen to them back to back, they're not so very different. But you have to close your eyes, because Tiny Tim was a bit of a nut job, (in my humble opinion). Here's the origina l, done in 1929 performed by Nick Lucas in Gold Diggers of Broadway. Sorry this opens in a new window and has an ad at the beginning. And here is the Tiny Tim version done in 1968 on the Johnny Carson Show. It also opens in a new window, but there is no ad on it. Enjoy this little trip down memory lane. Good Night, TTYL, and Be Well Oh, P.S.,  HydrangeaHippo.com is having a monthly scrapbooker's giveaway of lots of goodies.

I was wandering around YouTube tonight and listen and see what I came across.   I like this rendition of the song. Enjoy! and here is kd lang's version , for comparison's sake (for Muffie). I actually like this version much better, too. Good Night, TTYL, and Be Well,

I thought I'd stop by to let you know I'm still around, and --- to share. Last September, I finally had my Mobility Assessment  with a physical therapist.  She agreed that I was in need of an electric wheelchair, but she also wanted to make sure that I wasn't going to be just sitting all day, which is pretty much what I have been doing. This puts me at risk for getting a pressure sore. Who knew? (PS - I knew  that; you don't live with MS for 32 years without learning a thing or two along the way!) So she referred me to NuMotion, the local company that deals with Medicare and insurance and wheellchairs. On December 9, 2013 I got to drive a Quantum Q6 Edge inside my house, and found that it actually fits through my back door and into the kitchen and through the dining room and into the living room and around into the hall and into my bedroom. I think it will actually squeeze through the short narrow hallway back into the kitchen, but we would have to remove a folding d...

Turning Frustration into Power by Jennifer Digmann I still can hear Jim saying, “If it has wheels, it’s going to give you problems.” That phrase repeats over and over in mind, and I smile. I smile because Jim always will be very special to me (he was my first male caregiver who was not my husband or my brother). I smile because thinking of Jim  brings back good memories of cheesy jokes and great baseball games. I smile at the irony of having wheels equalling having problems. In my case, wheels are necessary for my independence. Since 2002, my MS has progressed so that I’ve become reliant on using a power wheelchair. And thus, the wheels I’m referring to are on Grape Ape . Yes that Grape Ape, the name I gave my power wheelchair that is not even 3 years old! Got wheels? Yes, big problems indeed. I started using that chair specifically for pressure relief. Grape Ape “tilts in space,” which is just a fancy way of saying, “reclines.”  This chair is supposed...

Have a listen to  this TEDx talk by Dr. Brene Brown. After you do, you will want to sit back in your seat and think about it for awhile; because therein is much to digest, both as women and as people. I love to learn new things, and I like it that Oprah, of all people, is one who leads me to do so. This was brought to me from the interview in the June 2013 issue of O magazine which I was reading, yes, in the bathroom,  last night. You're welcome. Good Night, TTYL and Be Well

...that I get back to blogging. We have had a magnificent Summer this year. NO RAIN in JULY; the last time that has happened here (at Sea-Tac airport where our official records are taken) was in 1960. I was five years old. I probably thought all Summers would be like that! How naive of me. In August we had a few days with light showers, but many days in the 70's and 80's. Today it hit 80* with the slightest of breezes. Just perfect weather for any outdoor activity. My  activity was to  sit on the patio and try not to get too much sun while reading my book. I think I will try to get to Starbucks tomorrow to get a double star day beverage (if you go after 2 PM). It's supposed  to cloud up with a chance of a shower, so I may or may not take the scooter. The only kind of shower I need is the kind better taken indoors. Not that I stink or anything, but really, who want to be caught outside in the rain without an umbrella or a coat?  And if it is like the last shower we...

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I was singing in the shower today   when I realised  that my shampoo is lime scented and my cream rinse is coconut. Now let me  get this straight, I thought. You put the lime on the coconut and you mix them all together. [or the coconut on the lime...] Oohweee. At least I didn't have to call the doctor and wake him up.

Google+ is what fucked me over. It has connected my blog to Facebook, and therefore "outed" my anonymity. It recognises only my real name, not Webster. But I write as Webster; I know it's a small thing, and doesn't really affect me that much as so few people who know the real me read my blog. But now I guess they can - if they were so inclined. I guess it was just a matter of time before Google would merge Facebook and Blogger. We all should have seen that coming. But I am myopic. No, really, I am.  My glasses are thick around the edges. Seriously thick. As, it would seem, is my brain. I have started a Wordpress blog, but since I am still in the learning stage, if you visit it there's not much there. Just one post so far. Heck, I'm not even sure of its' address! So, don't even bother trying to find it. I'll let you know when it's up and running; if it ever is. I would need to take a fair amount of time with it, and I'm not sure I want t...

BE FOREWARNED --  Blogger has already started making its changes. And so have I. I am in the process of creating a new blog, either over at Wordpress or Tumblr. If you have any suggestions for me, please send me an E-mail. at least I still get those. My biggest issue right now is that Blogger is saying that I have no LIST OF followers. This means there is nothing for me to read.  Err, Argh! Right, Kmilyun? Since I can still post over here I will post my conundrum; I tangled this lovely hedron, and now I have NO IDEA how to fold and glue it together. And the places I've gone to to show me are so vague as to leave me in a haze of Huh, What the H... was  that??? I leave you a something-or-other:  And here s=is one I recently finished, but I misplaced its name. Pretty cool, huh? So when I set up shop somewhere else, I will try to let you know about it here; assuming that you will still be able to read it. Otherwise, try to find me un...

The lousy news for my week month is that my experience with SoluMedrol seems to have been temporary. I am as bad (if not worse) than I was  before I took it. Every day seems to be a struggle. Oddly enough, I don't seem to be surprised by this; I just didn't expect this to be happening so soon -- know what I mean? But, if not now, then when? Come June 28, I will have had my MS diagnosis for 32 years. The actual diagnosis was transverse myelitis/probable MS. It wasn't until October of that year,  when I had my first  bout with optic neuritis that I was given the official proclamation, "You realize that this means you have MS, don't you?" by the opthamologist. Well, no, and yes; I was acting as if it was MS (as was suggested to me) since June, but I hadn't really taken in the intricacies of what comprised a "proper" diagnosis. Possible, Probable, and Definite weren't yet part of my lexicon. That was then. This is now. So what do I do now? L...

I made an  icosahedron!  And tangled it! And there it sits on my keyboard. Lousy photo taken by moi (with my phone camera) [our regular camera has too many pixels for blogger and I don't know how to resize.] My art project that is in progress is a white box, about the size of a shoebox, tangled on all sides and then filled with several various shaped hedrons and/or prisms made of water color paper, then decorated with Zentangles. The box has a little way to go yet before it gets varnished for it's protection, then filled with odd shapes. I had made a truncated icosahedron (which was easier btw), but I gave that to the nurse who administered my last dose of SoluMedrol. She took an interest and I knew I was going to make it over in heavier paper anyway, so WTH. I can find ways to entertain myself. And I love to get in touch with my artsy side. Good Night, TTYL, and Be Well,

Don't you wish for simpler times?  One buys too much stuff for children these days. This is special. Takes just several minutes to enjoy. Then remember that all good things must come to an end. Even MS relapses from hell. I finished my treatments today.  I am tired, not wired. So far I would say that I am back to baseline; perhaps a bit better, though I did want more. I wanted magic to take me back about ten years. Alas. At   least, so far, I have been transported back about two weeks. But I am going to be okay. I hope that you enjoy this short video. Good Night, TTYL, and Be Well,