halt stop forget relax

Every meal I have had here has been, to put it in a word, awful.  I mean, seriosly , who the fuck can eat this shit? In the beginning I complained to my therapists, PT, OT and Speech, who always asked, "How was lunch, or dinner?" seemingly making comversation. I didn't realise they were reporting back to the head dietian every word I said!  Then the manager comes to visit me (not once, but twice) and asks how I like the meals --  what am I supposed to say?  That they suck?  No. I tell her that they are a far cry from what I am used to - which is true, and then I further soften it by telling her that I understand that she has to cook on a budget, and I don't expect organic food here, and she has to do what she has to do. What I didn't say and what I do expect is to get what I ordered from the menu. Oh, how I wish I had kept all of the lunch and dinner daily lists that came with my food. I swear there was a mistake on every single one of them! There were ite...

I  don't know how I will get there, whether by car or Shuttle, those are details to be worked out by othes, all I know is that I am getting out of here. Alive. I want some real food; I want to make a smoothie. Hell. I'll even put some whey into it to add some protein. I went head to head with a nurse today about adding whey to my diet. I asked her what they were going to put it in, and she had no answer. Juice, I offered? Or perhapss the Glucerna? (like Ensure).  So I declined. She had me fill out a form saying why I declined. On the form it said that by not taking the whey, my protein levels would go down. I told her that was not true -- that my protein levels would stay the same. She changed it, but didn't like being questioned (or corrected). I suppose I could have put it in my yogurt, but I kind of like being contentious. Damn, I'm glad I have (some of) my wits about me again.  Now I just have to work on getting stonger muscles. Good Day, TTYl, and Be Well, ...

Thus goes the story of my life. . . In my last entry, far too long ago, I warned you of the problems that can be caused by edema; most notably edema of the feet combined with tight fitting shoes which is what landed me straight into the arms of Dr. S at the Wound Clinic and on to her protocol of "no weight bearing" for the last 10+ months. MS is hard enough to deal with by itself; managing the secondary issues makes it all that much more difficult. My journey into this 'short-term rehab' facility began with a Staphylococcus aureus infection in the pressure sore in my right foot that migrated to the bone. At the same time I had a persistant UTI. Skip back to the afternoon of July 17. For the previous 20 hours or so, DH was worrying, taking my temperature, my pulse, and watching me sleep the sleep of the dead, until he finally tried to get me up and saw that I was slurring my words and not making much sense. My temperature was low for me at 95.5. My pulse rate w...