halt stop forget relax

I forgot to take my memory mint today, so, I'll post it again, likely with changes. Biggest joke (and disappointment) -- MS drugs. They are all "disease modifying" and not "disease stopping."  I guess there's no money in finding a cure for MS. Biggest rip-off - Ampyra.  This was available before the pharmaceutical company got hold of it and tweaked its formula to call it its own so they could charge $1200 a month for it instead of the original $40 or so when it was 3,4-AP [aminopyradine] and you had it made at a compounding pharmacy. [was that a run-on sentence or what?]  Also,  it was hard to get a Dr. to give you an Rx for it then, too. Wonder why? Biggest joy - Ella Minnow Pea. This was a totally delightful book an I still recommend it. Biggest Good-for-Me - Continuing  to do Zentangle despite my shaky and numb fingers.  I can see the difference from two years ago! Also am having some ON issues. Aaargh! Biggest  Obstacle - MS, and al...

Today, the day that sha ll remain "in inf amy," my computer went to bl ackscreen a t the auspicio us time of High Noon.  It is only because we retained my first la ptop that I bought i n 2000 (or so) , a Dell Inspiron 8000, that I am able to post at all. I ha ve, at leas t tempora rily, lost everythi ng -- and I can't tell you when I l a st ran a b a ck-up , becaus e that's not my job; I don't "ge t" computers a nd don't know of such things, and the powers tha t be , while adept at, say, gett ing this old thing to keep on working as our f a ll - back 'puter, isn't so current on ma intaining my other one. Life sucks; MS sucks, and I 've just dropped a bo a t-load of money on two new pair of eyegla sses. Sea rs d oesn't h ave the offers they used to. In s tead of letting me use my old regular frames for my new r eaders , they ha ve changed all of their len s-shapes so that you have to move on to a newly shap ed frame -- also...

  Yeah, that. Now, in addition to having pressure sores on the bottoms of my feet (which are getting  smaller with time), my tiny sores on my bum have morphed into one larger sore which, while not actually meeting Medicare requirements for the medical equipment they should have dispensed to people with worsening MS, but didn't, I now have  shown at least enough progression that my Medicare Supplement Policy has agreed to buy me a semi-electric hospital bed with an APP mattress, a RoHo cushion for this piece of shit chair, and a Hoyer lift.  Now the bed and mattress will allow me to lie on my side, relieving the pressure, and when I am back on my feet, the seat will be very welcome, though I am not sure how much time I will be "allowed" to sit each day. They should be here before 2 P.M. today. Can't wait, though my bedroom will need some major moving of dressers etc. before I can reclaim it as my own. 888888888888888888888888888888888888888888888...