Whoever said that things couldn't get worse...
Yeah, that.
Now, in addition to having pressure sores on the bottoms of my feet (which are getting smaller with time), my tiny sores on my bum
have morphed into one larger sore which, while not actually meeting Medicare requirements for the medical equipment they should have dispensed to people with worsening MS, but didn't, I now have
shown at least enough progression that my Medicare Supplement Policy has agreed to buy me a semi-electric hospital bed with an APP mattress, a RoHo cushion for this piece of shit chair, and a Hoyer lift.
Now the bed and mattress will allow me to lie on my side, relieving the pressure, and when I am back on my feet, the seat will be very welcome, though I am not sure how much time I will be "allowed" to sit each day. They should be here before 2 P.M. today. Can't wait, though my bedroom will need some major moving of dressers etc. before I can reclaim it as my own.
I have applied, and been denied (at least for this year) for help with Rebuilding South Sound Together for some help to get our roof re-shingled and our bathroom door widened, along with some re-routing of a major hot water pipe which is smack dab in the center of the room where a previous wall had hidden it; when that wall came down in a previous remodel, the bathroom was made bigger but the entry door is still too narrow for my chair and there is no space to turn around. Fortunately, my walker still fits through, and so that's how we roll. Sadly, those walker's wheels are getting very old and the rubber is softening, so even going from room to room to toilet or change clothes ... ah, but it's the same sad old refrain, now isn't it? It's one thing or another.
Be Well,
P.S. At least it seems that our frigid weather pattern has broken. Supposed to get into the 50's by the week end. Perhaps I can take off my long underwear!!!
P.P.S. They're here, and it's not a bed that has a manual crank at the end (a semi-electric) so a caregiver could raise and lower the bed. I find this very disappointing. Hopefully one day I can regain some independence with this, and not always rely on others for help.
I am so very sorry. Oceans of caring wishes are flooding your way.
ReplyDeleteOne of our politicians some years ago said that 'life wasn't meant to be easy...' A sad truth, though I don't think he had any concept of how hard some lives are.
well crum ... I typed up a super great comment and when I hit the publish it lost it dang, Sorry the bed was not as expected. I always wonder how the people who know how to work the system do it and end up with top knot-ch stuff? umm hope stuff gets to looking brighter for you and the evil MS bastards leave you alone \.
ReplyDeleteI sit here pissed off on your behalf. There has to be a way that you qualify for some better help/equipment that works for you. I'm sorry for all that you're going through. :(
ReplyDeleteIt does seem that your sense of humor is intact, something that does help. (((hugs)))
Thanks for your comments. MS is indeed a Sad Truth; Jan, that's happenmed to you before, if I recall (LOL), Ami, my sense of humor is there, but this week seems barely hanging on, It will be back, have no fear.
ReplyDeleteAs Winston Churchill saiid, "Never Give Up."