Biggest . . .

I forgot to take my memory mint today, so, I'll post it again, likely with changes.

Biggest joke (and disappointment) -- MS drugs. They are all "disease modifying" and not "disease stopping."  I guess there's no money in finding a cure for MS.

Biggest rip-off - Ampyra.  This was available before the pharmaceutical company got hold of it and tweaked its formula to call it its own so they could charge $1200 a month for it instead of the original $40 or so when it was 3,4-AP [aminopyradine] and you had it made at a compounding pharmacy. [was that a run-on sentence or what?]  Also,  it was hard to get a Dr. to give you an Rx for it then, too. Wonder why?

Biggest joy - Ella Minnow Pea. This was a totally delightful book an I still recommend it.

Biggest Good-for-Me - Continuing  to do Zentangle despite my shaky and numb fingers.  I can see the difference from two years ago! Also am having some ON issues. Aaargh!

Biggest  Obstacle - MS, and all it has imbued in me:  this chair for which I was given no options save for the cheapest of seats, and a footplate that was not kind to my swollen feet and which eventually caused the bottoms of my feet to develop pressure sores which I am still treating. and Medicare for being re-active rather than pro-active and look how much more that's costing them now? So, yeah - MS.

Biggest Comfort  - Sleep.   Y'all know how much I like my sleep.  I do it in the morning, I do it in the evening. . . . and allllllllll  through the night.  When I sleep, I don't feel pain.

Biggest Splurge -  Land's End sales
  
Biggest Frustration -  Hmmm,  getting just $18 more in monthly income from SSDI in 2015.  I guess the whole country is broke. . . except for the1%.

Biggest Joy - My pets, Romy my dog, and my three cats Purnima, Nishita and Rajah. They love me without getting disappointed in my condition. Now isn't that unconditional Love?


Biggest Annoyance - The ramp from my patio to the gate to the back yard not getting fixed all last Summer, rendering me captive at home. Say what you will, but DH is micro-managing my life.

"But I worry about you when you are out and I don't know where you are."  "So, come with me."
"Don't feel like it."
"You could use the exercise."
End of discussion, because that was a criticism.

Biggest Fill-in-the-blank - The house, the patio, back and front yards going to seed. DH has never been one to ask for help, so re-roofing the house never happened, and now we enter Winter with tarps on our roof.

So there you have it -- another Biggest entry!

Good Night, TTYL, and Be Well,


P.S.  I do have to mention this, however, for whatever he lacks in getting things done around here he makes up in spades in tending to my nursing care.  I would be remiss if I didn't give him props for that, alone.