Finished with Day Three
This has been a busy week for me. As I said, I saw my neuro last Friday, and we decided to give 4 days of SoluMedrol a try, just for shits and grins. I went to a different infusion center which is actually just three floors above my urologist's office. It's kind of like a get well soon people assembly line
They have eight recliners lined up with a small table and the med pole between them; their are three nurses there except at lunchtime (but other nurses are around to assist if needed).
They have a coffeepot that is usually empty by 11:30, and envelopes of Swiss Miss, and some peanuts and Ritz crackers for a snack. It's sort of a no frill place, but seems to operate quite efficiently. Apparently, the reason I couldn't get into St. Joe's is because they are in the process of moving that wing over to the new outpatient building. One thing that was different is I was briefly screened by the Doctor who started up this whole department, and who is an internist who specializes in infections medicine. He was very pleasant, funny, congenial, and thorough in his preliminary evaluation of me. I liked that a lot.
The one thing I missed from having it done at the hospital was the private room, with access to cable TV, and they always served a simple lunch - sandwich, juice, chips, pudding - any or all. They had warmer blankets too, because I always get cold during infusion time. That, said, I think I prefer going to this place, #1 reason - less walking from parking.
I have a friend who lives in Yakima who is in the process of separating from her husband, and who has been visiting with family members up the peninsula and a local friend for a few weeks. She's been staying with us since Monday, and has gone with me to each treatment. She will probably be leaving tomorrow, because it's not supposed to be snowing on the pass until Saturday. So DH actually told me he would go with me to IV! Although I think I have improved enough that I could deal with it alone, I almost hope that the little tube they left in (for the second night tonight) isn't good so he can see how a STRONG WOMAN can handle a needle stick. Criminy! You see, since he's unemployed and doesn't do a GD thing except watch TV, and cook dinner for me, and occasionally the laundry when he's out of something, I want him to go to the plasma center and sell his plasma to the tune of an extra $300 a month. It's only 7 minutes from our house - No Big Deal. But he doesn't like needles. Waahh!
I don't really mean to rag on him, I have diagnosed him (with my wealth of experience of a BA in psychology, ten sessions of Cognitive therapy (which I liked for depression), ten sessions of "a new agey" therapy, 8 sessions from a counselor who read "Courage to Heal" and decided my crying must be due to repressed memories of child abuse (NOT), and ten sessions from a very likable therapist who would "support me in whatever I felt I needed to do,' e.g. get a divorce. What slush, I decided, there was only one question I had to answer for myself; would I be better off with him, or alone? And I decided to stay, because I know he loves me, and because we rarely argue, he's not freaked out by my independence, etc AND he knows how to fix things around the house. The funny thing is, he is a counselor who doesn't seem to realize how ill/stuck he is. I just want the man I married back. But he probably wants the healthier me back as well.
So see what I spill when I'm on the "roids? Fun stuff, huh?
Yesterday we also went to Discount Medical and I bit the bullet and bought a raised toilet seat with handles. The way I'm feeling now, especially at the end of the day, I couldn't wait for any assistance - so I bought one for $59. It helps a lot, glad I got it. I'm sure it will also come in handy this summer when I get wiped by the heat.
Now I just have to hit up the MS Society Equipment program for a pair of batteries for a scooter that was given to me, and maybe a way to transport it.
So, OK. I'm getting a little tired now, so I'm going to bed after taking 2 temazepam (Restoril), and a macrodantin, and a diazepam, and a baclofen, and a zoloft.
Good Night, TTYL and Be Well
I hate needles also, but I had to get tough and realize I had no choice. Glad you are seeing the good in your husband, I have to look for the good in mine.
ReplyDeleteHi Webster,
ReplyDeleteI sure don't envy you with that confusing cocktail of medication. Just reading the list makes me wonder how you even keep track of it all. You must have tremendous organizational skills.
Best,
Marty
Marty - it's a piece of cake. A few are just at bedtime, and baclofen is as needed. No poroblemo.
ReplyDeleteStuff person - I had a blood slot in my thigh 15 yers ago, and had to give myself 3 shots of fragmin before starting on a six-month protocol of coumadin. I got over my needle fear in a count to three hurry. When I was on Avonex, a few times I would freeze, not because it hurt, but because the needle was longer. The new copaxone needles are smaller, maybe a half inch and finer, and I can hardly feel them.