Things the NMSS, MSAA, MSF nor any of the MS Organizations Won't Tell You









Like, how easy swollen feet can cause a pressure sore.

Like, how easy it is to become bedridden.

Like, how not all bowel incontinence is caused by constipation.

Like, how Medicare is reactive and never, ever, proactive.

??? I mean ... WTF???

Doesn't anyone tell the truth about the variety and possibility of MS, or are they all afraid to scare the newly diagnosed? Let's fill our magazines with articles about supercrips who run marathons and climb mountains. It has bothered me for a lo-o-ong time, but it seems to have reached a tipping point with my patience.

I can write a paragraph, or an entry, about each of those statements above. Perhaps I will.

Good Night, TTYL, and Be Well,


Comments

  1. WebsterMarch 21, 2016 at 6:07:00 PM PDT

    Sorry, but I couldn't manage to download a printable logo for the MSF. (Aargh)

    ReplyDelete
  2. Elephant's ChildMarch 21, 2016 at 9:08:00 PM PDT

    Sigh.
    And hugs.
    And having a good attitude doesn't remove one iota of the damage the disease has caused either.

    ReplyDelete
  3. SherriMarch 22, 2016 at 5:26:00 PM PDT

    Personally, I'm sick of it all as well. This type of phooey causes those around me to expect so much more that, at times, is completely unrealistic and undoable.

    Perfect example: "Catching Kayla"
    http://espn.go.com/video/clip?id=11909407

    ReplyDelete
    Replies
    1. WebsterMarch 22, 2016 at 9:04:00 PM PDT

      I watched it, and I have no words! I don't know whether to shake her hand or to spit into her sneakers.

      Delete
    2. GailMarch 23, 2016 at 8:07:00 AM PDT

      I hear ya - and also feel that "truth" is subjective - mine is different than yours, blah, blah, freaking blah! :-) and if I see one more ad for persons with MS swimming and biking and running I will shoot the TV, not really, but ya know? grrrrrrrr
      Love Gail
      peace.....

      Delete
  4. janMarch 23, 2016 at 9:21:00 AM PDT

    I don't mind the folks that are trying to accomplish something but the major "societies", advertisements etc are very deceptive. Drive me bonkers. Follow the money . ...

    ReplyDelete
  5. WebsterMarch 23, 2016 at 10:56:00 PM PDT

    Who swould've thought that this is what it would take to get some of you from out of the lurking mode :-D.

    ReplyDelete
  6. Kim@stuffcould....April 12, 2016 at 7:25:00 PM PDT

    Oh I understand all the bad, pain, damage MS has done to my body! What I coulda been but I barely remember life before MS. I drive myself crazy focusing on the positive, but I cant help it?? I have thought of blogging about the bad but then just sympathy

    ReplyDelete

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