three fifty A.M.
And here I sit at my computer, an aging laptop whose keys don't ll work, like that missing 'a' just there. That is one of the reasons I haven't written much lately. I'm a perfectionist and that is one of my strengths, but also one of my greater weaknesses. It couples well with procrastination, don't you think? It may be the source of my procrastination, well, strike that - it IS the source of my procrastination. I don't just want to write some slop, some drivel, so I wait until I have something to say, and then I never do ... hve something to say.
Just so you know, I am not going to go back to fix the errant a's that didn't type out. And I am going to do a stream of consciousness post, as most of them are, because I post out of guilt that I haven't posted in so long. So blah blah blah.
***** [where the eff is paragraph style???]
I have been so very lazy lately (the past many months) that I haven't really done much of anything. I haven't been doing any exercising and I feel myself getting weaker because of it which really sucks. It's like watching the water of life swirling the drain and I feel so stuck in this inertia. Not only haven't I been moving so well lately, I haven't been thinking clearly either. I forget what I am supposed to do, so I don't do things I signed on for. I guess I need to go back to making a master list and actually follow through with ticking through each item as I get it done.
Where I am failing most with this is in my sorority. I was appointed (not asked) to be the MS chairman and the Easter Seals chairman, this in addition to being Jr. Past President who is in charge of coming up with some project that will make money for our Disaster Fund. I cannot think of a project. I need to come up with something - a basket to auction off at a state meeting perhaps? I will need a theme for it, though. (something that includes wine would be good) Being MS chair is easy peasy: several of our group prticipate in the MS Walk every year, so aside from the end of year report, tht's done. I haven't been able to elicit a response from our State Easter Seals Chairman, so I need to look up her telephone # nd give her a call. Perhaps this weekend. No. Definitely this weekend.
Gee, look at that. I've made some progress by just typing this post. A plan! whoopie! (sarcasm is dripping)
*****
The holiday season is upon us. Halloween came and went, and NO decorations were put up. NOT ONE. And we have some pretty cool decorations. And get this? We turned off the porch light this year because we didn't buy any candy. You see, we got the car back from car camp the 17th of October and the bill was high enough to make us rethink spending $25 for bags of goodies for stranger's kids. DH is as stuck as I am (more so, I think) so nothing is getting done.
I haven't made any plans for Thanksgiving, though I know I am welcome at my cousin's for dinner, I just haven't decided. Likely DH won't want to come, but we'll see. My family's Christmas is to be up in Anacortes where all my nephews will be bringing their kids, several of whom I haven't yet met. When I went up last year, I spent the night and came home the next day, but this year I don't think it seems wise to do tht. I foresee three potential issues. 1. I am weaker. Last year I could hardly get into the guest bed because it was so high. What is it with the high mattresses these days. It's an issue in hotels as well. 2. The toilets are low. Getting up from them is difficult. Using them is unavoidable. 3. The drive is about three hours. Cognitively, I wonder how safe a driver I am any more, and then there's the cost of gas, although my SiL did give me a gas card this Summer when she thought I might be coming to Seattle, but didn't so I guess that's not an excuse. I guess what I am saying is: Christmas is up in the air.
*****
Things I have planned between Thanksgiving and Christmas: a visit with my neurologist on the 26th; (and I JUST looked at my calendar and realised that an MS talk I wanted to see is Tomorrow morning. Suffice to say I won't be getting up early enough to be at a breakfast meeting...) Lunch with the girls on the 29th; Catheter change on the 4th; and my sorority's Christmas dinner and Secret Santa gift exchange on the 20th [oh, another bathroom situation that is not easy - the seat is low and there is nothing to push up on, let's hope I don't have to go, I've lucked out the last two years].
And one wonders why sometimes it's just easier to stay at home.
What do I need to prepare for what's coming my way?
I need Christmas cards for each of my sisters.
I need to purchase a gift card or two for my Secret Santa. I already got her a small metal wallet for her credit cards.
I need to make a list of what questions I have for my neuro. Uh, none? Will BG12 help me? I've already decided against Tysabri, and I think the side effects of Gilenya are pretty lousy too, so no to that. What else? PT would be good, but I can't afford the $35 co-pay per visit. At least I'll get an Rx for a Ritalin refill. Sure could have used one a few times this month.
Okay, I guess that's all I got. I will try to post more often, and with some topic on which to opine. Perhaps that should be my new year's resolution.
Good Night, TTYL, and Be Well,
Oh, and just in time for the season of eatin', here's a public service announcement:
That's ll, folks! (now where the hell did they put spell check? Oh forget it!)
Just so you know, I am not going to go back to fix the errant a's that didn't type out. And I am going to do a stream of consciousness post, as most of them are, because I post out of guilt that I haven't posted in so long. So blah blah blah.
***** [where the eff is paragraph style???]
I have been so very lazy lately (the past many months) that I haven't really done much of anything. I haven't been doing any exercising and I feel myself getting weaker because of it which really sucks. It's like watching the water of life swirling the drain and I feel so stuck in this inertia. Not only haven't I been moving so well lately, I haven't been thinking clearly either. I forget what I am supposed to do, so I don't do things I signed on for. I guess I need to go back to making a master list and actually follow through with ticking through each item as I get it done.
Where I am failing most with this is in my sorority. I was appointed (not asked) to be the MS chairman and the Easter Seals chairman, this in addition to being Jr. Past President who is in charge of coming up with some project that will make money for our Disaster Fund. I cannot think of a project. I need to come up with something - a basket to auction off at a state meeting perhaps? I will need a theme for it, though. (something that includes wine would be good) Being MS chair is easy peasy: several of our group prticipate in the MS Walk every year, so aside from the end of year report, tht's done. I haven't been able to elicit a response from our State Easter Seals Chairman, so I need to look up her telephone # nd give her a call. Perhaps this weekend. No. Definitely this weekend.
Gee, look at that. I've made some progress by just typing this post. A plan! whoopie! (sarcasm is dripping)
*****
The holiday season is upon us. Halloween came and went, and NO decorations were put up. NOT ONE. And we have some pretty cool decorations. And get this? We turned off the porch light this year because we didn't buy any candy. You see, we got the car back from car camp the 17th of October and the bill was high enough to make us rethink spending $25 for bags of goodies for stranger's kids. DH is as stuck as I am (more so, I think) so nothing is getting done.
I haven't made any plans for Thanksgiving, though I know I am welcome at my cousin's for dinner, I just haven't decided. Likely DH won't want to come, but we'll see. My family's Christmas is to be up in Anacortes where all my nephews will be bringing their kids, several of whom I haven't yet met. When I went up last year, I spent the night and came home the next day, but this year I don't think it seems wise to do tht. I foresee three potential issues. 1. I am weaker. Last year I could hardly get into the guest bed because it was so high. What is it with the high mattresses these days. It's an issue in hotels as well. 2. The toilets are low. Getting up from them is difficult. Using them is unavoidable. 3. The drive is about three hours. Cognitively, I wonder how safe a driver I am any more, and then there's the cost of gas, although my SiL did give me a gas card this Summer when she thought I might be coming to Seattle, but didn't so I guess that's not an excuse. I guess what I am saying is: Christmas is up in the air.
*****
Things I have planned between Thanksgiving and Christmas: a visit with my neurologist on the 26th; (and I JUST looked at my calendar and realised that an MS talk I wanted to see is Tomorrow morning. Suffice to say I won't be getting up early enough to be at a breakfast meeting...) Lunch with the girls on the 29th; Catheter change on the 4th; and my sorority's Christmas dinner and Secret Santa gift exchange on the 20th [oh, another bathroom situation that is not easy - the seat is low and there is nothing to push up on, let's hope I don't have to go, I've lucked out the last two years].
And one wonders why sometimes it's just easier to stay at home.
What do I need to prepare for what's coming my way?
I need Christmas cards for each of my sisters.
I need to purchase a gift card or two for my Secret Santa. I already got her a small metal wallet for her credit cards.
I need to make a list of what questions I have for my neuro. Uh, none? Will BG12 help me? I've already decided against Tysabri, and I think the side effects of Gilenya are pretty lousy too, so no to that. What else? PT would be good, but I can't afford the $35 co-pay per visit. At least I'll get an Rx for a Ritalin refill. Sure could have used one a few times this month.
Okay, I guess that's all I got. I will try to post more often, and with some topic on which to opine. Perhaps that should be my new year's resolution.
Good Night, TTYL, and Be Well,
Oh, and just in time for the season of eatin', here's a public service announcement:
That's ll, folks! (now where the hell did they put spell check? Oh forget it!)



You crack me up !!!
ReplyDeleteSometimes the truth about life can be so .. boring and dull and terrible but if we put a bit of humor in it, well, it helps so much.
You know I hope that things improve for you.
It's the good times that get me through the bad.
And, Holidays, well, I stay away from them now. I'm all for the stay at home but you go if you think you can.
And, your neur .. is he a one question kind ? I hate those type ... I went to a Dr. who had a sign on her wall that said if you had two questions you needed to make another appointment. I went to her twice cause I always have a list of questions.
Love the punctuation at the end.
xo,
JC and the Purr and Fur Gang
I'm glad I could make you laugh, JC. We'll see bout the holidays. We'll just ... see.
DeleteI'm lucky to have a neuro who does take time to listen and answer questions. But, I don't always like the answers he gives. He's very conservative. He only prescribes according to data from publishes studies, as long as those studies are from a pharmaceutical company. He would rather prescribe a drug that costs many tens of thousands of dollars that has the potential for life threatening side effects than a little medical MJ for muscle spasms. His conservatism is his only downfall.
Thanks for your kind words.
Seems we are all in sorta the same little boat precariously staying afloat.
ReplyDeleteI started taking the Adderall again. I don't know if it's helping or not because I haven't found myself in the situation to get lost or confused. Scares me!
Coach & will be doing traveling over Thanksgiving and Christmas. Thanksgiving won't be so bad... 3 hour drive, 3 day visit. My mom's house.
Christmas is another story. 7+ hour drive one way... a week away from home. Staying at my Dad's, then my daughter's, then some of Coach's family. Ugh. I'm going to be wiped out for 6 months after this adventure!
Ahh, that answers my question - the Adderall was for that brin fog that got you lost in the hinterlands. Well, may it give you some energy as well as clarity.
DeleteAt least during the holidays you don't have to do the driving. That's one good thing. Get a (Christmas) book on CD and listen to it on the way. Or sing carols, LOL.
Yes we are all on that little boat ... "Lollin', lollin', lollin' on the liver." (as heard on Japanese TV)
I certainly hear you about just wanting to stay at home! I actually have a room at my daughter's beautiful home -- seriously, they call it my room! But, it's hard to use the guest bathroom -- low seat, difficult shower. So, I rarely stay over. I'm the same way about just wanting the comforts of my own home.
ReplyDeleteMy own inertia gets the better of me -- a body at rest tends to stay at rest... But I force myself to move because the consequence of not moving could be permanent. What a choice!
Peace,
Muff
Miff, you just reminded me - I could bring my raised toilet seat in case I need it. You could do the same at your daughter's house, and take a spit bath instead of a shower. Oh, the compromises we all must make.
DeleteThanks for your comment!
Oh I feel for you...the middle of the night is a nightmare when I have those. I feel the same about having nothing to blog about...I hope you feel better soon
ReplyDeleteMidst reading your post my partner and I start a fight, it relates to dining here and my stress. The chef now insists he must know if we want tofu or not. I won't go into it here. PLUS, your post was stressing me out---all that to do. Been there/done that, in charge of stuff, time tables to be met, ideas required, MS in the effin way. And blogging whilst trying to write books with one effin finger. And, no, voice tecno doesn't do it for me. I lose my writer's voice. I think it is because I have my "acting public speaking voice" that takes over. I am HATING my posts. Just when I have started getting healthy daily readers---they are treated to sh**. AARRGGHH HELP!!! S.O.S.
ReplyDeleteYou have a co-pay with PT? Now I feel bad complaining about Medicaid saying NO to everything. We are arguing about my forearm crutch. Trivial, I know. I guess when MS takes all your control away you like to pretend you have SOME control.
ReplyDeleteYou are so funny!!!
I might have forgotten - in case I did, Happy Thanksgiving. If I didn't, well you get two Happy Yappy's. =)
ReplyDeleteJust found your blog and so glad I did. Got diagnosed in 10/11 with RRMS. I'm definitely keeping a positive frame of mind and a sense of humor about things and need positive blogs to help me. I just got back to blogging after a 2yr hiatus. Thanks for the laughter! Will be following :)
ReplyDeleteWhen do you need to make a basket or whatever to auction off? Email me, I'd be happy to talk to you about donating ornaments or a wreath or something (we've done it for several organizations year round).
ReplyDeleteGet better, my friend.
xoxo
hugyourkidz@aol.com
Kim - middle of the night is probably my best time, being all topsy-turvy with my schedule and all. Certainly it is the least of my problems.
ReplyDeleteDiane - sorry I stressed you out. I'm with KarenLee - STOP letting the chef push your buttons; he's a narcissist, pure and simple. And YES, tofu is good food. So is curry.
Sherry - YES I have a co-pay for PT. And I can't afford it, so I don't go. Sucks, no? I'll toss in a Merry Christmas to you now so I don't forget later. LOL.
Welcome Jodi, Thanks for commenting. A positive attitude is your #1 best weapon for living with this disease. Best of luck to you.
Attila, let me think about it and I will be contacting you. I still have the ornament you sent last year hanging from my mantle. I think it's gorgeous, and think of you whenever I look at it.
THANKS FOR ALL OF YOUR COMMENTS EVERYONE!!