Some nice news for us all, perhaps
I saw my neurologist yesterday and the results of my exam were that nothing had changed, except that I am walking slower, but that could also be attributed to the minor modification DH made to my walker - he moved the back wheels from the outside to the inside so it would fit through the bathroom door. That's a good thing, but it also means that I bump into the wheel with my left foot when I try to walk a little faster, which is frustrating. I am thinking of having him change them back, at least until we need a means to transport me into the bathroom. Right now I can get in there on my own with the three wheel walker (with NO seat) just fine.
No changes in my meds. Still on the Copaxone (DMD), baclofen (spasticity), zoloft (depression), diazepam (spasms at night), temazepam (to sleep), ritalin (to stay alert), and vitamin D (apparently good for MS - who knew?). The good news is that BG12 should be available sometime in March. There is some sort of back-log with the powers that be that is slowing it down. My doc did one of the studies on it, and he said it was well tolerated, and it's results compare to those of Copaxone, so, depending on how they price it, I may switch over to it next May.
Of course, we all know that this is the best medicine available.
*****
I hope you all had a pleasant Thanksgiving. Mine was blah, but by choice, I stayed home and had a turkey salad. WooHoo! Since our stormy, rainy weather was over by Wednesday, I probably should have just got my gumption up, but I didn't. I don't really feel like driving up to Anacortes for Christmas, either. Sure it would be fun to see all the new little ones -- but I'm not feeling it.
Lunch this Thursday may be postponed. It's predicted to rain, so that may be fine. Maybe we can do it next week.
So that leaves the next thing - a visit with DH's Mom, who has inoperable esophageal cancer, and who is putting her things in order. She will be 90 on Dec. 26. His Sister is also in poor health with COPD, and has lost weight. She has always been very thin, but is now down to about 80 pounds! Fortunately her daughter is staying with her at this time.
Sorry to leave on such a down note. Send warm thoughts to my family, please.
Good Night, TTYL,
No changes in my meds. Still on the Copaxone (DMD), baclofen (spasticity), zoloft (depression), diazepam (spasms at night), temazepam (to sleep), ritalin (to stay alert), and vitamin D (apparently good for MS - who knew?). The good news is that BG12 should be available sometime in March. There is some sort of back-log with the powers that be that is slowing it down. My doc did one of the studies on it, and he said it was well tolerated, and it's results compare to those of Copaxone, so, depending on how they price it, I may switch over to it next May.
Of course, we all know that this is the best medicine available.
*****
I hope you all had a pleasant Thanksgiving. Mine was blah, but by choice, I stayed home and had a turkey salad. WooHoo! Since our stormy, rainy weather was over by Wednesday, I probably should have just got my gumption up, but I didn't. I don't really feel like driving up to Anacortes for Christmas, either. Sure it would be fun to see all the new little ones -- but I'm not feeling it.
Lunch this Thursday may be postponed. It's predicted to rain, so that may be fine. Maybe we can do it next week.
So that leaves the next thing - a visit with DH's Mom, who has inoperable esophageal cancer, and who is putting her things in order. She will be 90 on Dec. 26. His Sister is also in poor health with COPD, and has lost weight. She has always been very thin, but is now down to about 80 pounds! Fortunately her daughter is staying with her at this time.
Sorry to leave on such a down note. Send warm thoughts to my family, please.
Good Night, TTYL,
So glad your neuro check-up went well, but sorry about the family illnesses. I'm the same way about traveling anymore -- and I don't even drive now! I just can't get up enough steam to want to go places. Maybe you'll get a burst by Christmas!
ReplyDeletePeace,
Muff
One can only hope, right?
DeleteLook at the bright side, no new meds for now. Yeah !!!
ReplyDeleteSorry about the chair. I know I hated using mine when I had to. It stays in the garage reminding me and I yell at it as I pass by.
Also, sorry about your mil, life is just yucky sometimes.
Sending you a big hug. Cause sometimes that's all I need to keep on going.
xo,
JC
Oh JC, those chairs are our friends. I never yell at mine. I have yelled at the cat who wouldn't get out of my way however - and gave a gentle pull on the tail as I passed.
DeleteI'm very excited about BG12. My neuro in Austin (the good one) and I have been talking about it for almost a year, just waiting for it's approval. The decision has already been made...
ReplyDeleteGood that you haven't progressed. I take the Vit D as well... 50,000 units a week (thank goodness it's only one pill on Sundays). Who knows if it works/helps or not but can't hurt.
Keeping you all in prayers.
Thanks for the prayers - they must be passing in the ether on the way - [ooh, nice image.]
DeleteBG12 can't come soon enough; I'm tired of the sore shot spots.
Warm thoughts to you and yours. I know it's 'LIFE' but it sure isn't easy, is it?
ReplyDelete(((hugs)))
Thanks Ami. I have an image of you with Star Wars fingers. Makes me smile. Sorry Winter is so hard on your skin. More of Life Sux, right?
DeleteI'm sorry that your life is so hard at the moment. We have just gone through a particularly trying time, and are coming out on the other side. Stay strong, warm thoughts are being sent to you and yours.
ReplyDeleteI am hoping that this too shall pass, but I know that I have to make some personal changes for it to happen. Isn't that always the case? I'm glad you have rounded the bend. May you get lots of energy for the holidays.
DeleteGreat news with your Dr report!! I'm a newbie with my diagnosis. I just 'celebrated' if that is the term I should use my year anniversary this past October. I had good news as well that I had no new lesions. Thank God! I am also on Copaxone. I am excited about BG12. I am going to stay on Copaxone for awhile. I want to see how people respond to the BG12 for a bit I think and then I think I will ask my Doctor to make the switch. I also take Vitamin D, B12, Calcium and Cranberry. Oh yes and a horse pill size of a multi-vitamin. I'm on Topomax to help prevent migraines and Fiorciet (sp?) for the migraines.
ReplyDeletePositive thoughts go out to your M-I-L and S-I-L. I hope that you will have your gumption up soon. We all get like that and maybe visits with friends and family will help make you feel better. It is just the getting out there that is the problem. I dread it sometimes myself but once I'm out there then I go to myself..why did I give myself such a hassle in the first place for? LOL! Because I realize I really am enjoying myself. Hugs sent your way. Have a good rest of your week!!
It sounds like you're doing all the right things. I'm lucky in that I don't have to deal with migraines. I hope your meds keep them at bay.
DeleteThanks for the positive thoughts for my family, Take care.
Skip takes Zoloft, too. Have you read reports that some folks who take it for an extended period are more prone to suicidal thoughts? I don't know what to think about anti-depression drugs. Do you think they work?
ReplyDeleteI haven't heard that about Zoloft, but I think I did about some other SSRI's. Actually, I started taking the Zoloft because I was having wierd thoughts of harming myself. Well, that and that I couldn't have a disagreement with DH without dissolving into tears, and I couldn't focus long enough to read more than a few pages of a novel. All that got better with Zoloft. [FOR ME - It doesn't help with DH's depression at all.]
DeleteI'm glad they help you with all those issues.
DeleteSo many warm thoughts are going to you and yours during this rough patch.
ReplyDeleteMuch appreciated. Thank you.
DeleteI don't remember when I started thinking of the holidays as something to be endured rather than enjoyed, but there it is. Having trimmed our festivities to what I can comfortably manage – which ain't much – I'm starting to enjoy them again. It's not what we used to do, but it's not bad. Stay well, Webster.
ReplyDeleteI know, right? I used to LOVE getting ready for Christmas - and little by little it is slipping away as too much effin' trouble. We'll do the best that we can. This year will be different for you, too, with Tuffy away. We all adjust to new normals this year.
Delete